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Category: HLHS

References to Hypoplastic Left Heart Syndrome

The Joy You Find in a Friend
HLHS

The Joy You Find in a Friend

Izzie has trouble making friends. Her dad and I don’t understand why or how, but she seems to struggle with … Continue reading The Joy You Find in a Friend

HLHS

Hijacked

I’ve been hijacked. Spaces that used to be mine have been overtaken by Melissa. What else is new? I mean, … Continue reading Hijacked

HLHS

The importance of being in the moment, even if the moment is hard

Not sure what is going on but for the past few weeks, I’ve experienced a lack of energy and motivation … Continue reading The importance of being in the moment, even if the moment is hard

HLHS

Free Range Parenting: a few words.

The topic at my inaugural PTA meeting was the car line in front of Nathaniel Morton Elementary School. A topic … Continue reading Free Range Parenting: a few words.

The moment you take when you have to catch your breath…
Boston Children's Hospital, Family, HLHS

The moment you take when you have to catch your breath…

Last night after dinner, Izzie and her dad were sitting on the couch having an ice pop. Addie’s latest obsession … Continue reading The moment you take when you have to catch your breath…

Boston Children's Hospital, Family, HLHS, Sobriety

Keeping it in the day.

In 2012, I became acquainted with the Schultz family through Mike’s blog ‘Echo of Hope’. The description of hospital life … Continue reading Keeping it in the day.

HLHS

Happy Birthday, Dad. Love you.

Today, my father would have been 76 years old. In years past, I would call him up, sing him ‘Happy … Continue reading Happy Birthday, Dad. Love you.

Family, HLHS, Sobriety

Inviting in Compassion while shutting the door on resentment

When she awoke the next morning after a very restless night, she realized that she still had blood in her … Continue reading Inviting in Compassion while shutting the door on resentment

HLHS

Half the Heart Mom I Used to Be

Heart month is coming to an end and I totally slacked off spreading CHD awareness. No pun intended, but my … Continue reading Half the Heart Mom I Used to Be

HLHS

The power of having a choice, and the hope that comes with it

I am regretting not attending the Women’s March in Boston this past Saturday. I knew that it would have been … Continue reading The power of having a choice, and the hope that comes with it

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UnknownGeneticMaterial

letters to a mother I never met

Pique

A one-page scrolling theme for small businesses

Matthew Fray

Author and Relationship Coach

The Belle Jar

"Let me live, love and say it well in good sentences." - Sylvia Plath

elissalevindavis

A Devastatingly Heavenly Darling

Life with adult ADHD: never a dull moment for a busy darling

Adventures of a Former Party Girl

Ginger. Newly sober. Cat lover. Still figuring out if I'm just as weird without alcohol.

800 Recovery Hub Blog

Written by people in recovery for people in recovery

Just A Rock

The trials of a young woman awkwardly trudging her way to happy destiny

Oliver's Twist

Hypoplastic Left Heart Syndrome- Our twist

keepingmychinup

"You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." -Maya Angelou

anaphase creative

litsense

Just another WordPress.com site

hopeinaheartshape

Finding hope in all shapes and sizes.

Echo of Hope

What's Up with Ari

Jud Nirenberg Blog

Just another WordPress.com site

hopeinaheartshape
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