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Finding hope in all shapes and sizes.

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Tag: HLHS

HLHS

365 days and counting…

  This is my favorite picture of Isabelle. It is the day our fight began. It is the week before … Continue reading 365 days and counting…

Boston Children's Hospital, Family, HLHS, Miles for Miracles

Marathon Monday

On a day when many people I know are standing at the starting line waiting for the race to start, … Continue reading Marathon Monday

Boston Children's Hospital, HLHS

When Geography Matters.

Today Isabelle had an appointment with Dr. Sadhwani of the Cardiac Neurodevelopmental Program at Boston Children’s Hospital. She was not happy … Continue reading When Geography Matters.

Boston Children's Hospital, Family, HLHS

6 Days and Counting

Tuesday is looming over in the distance like a lone dark cloud on a sunny day. Izzie is blissfully unaware … Continue reading 6 Days and Counting

HLHS

Echos of Denial

So here we are with 2 days until the fundraiser and one day before Isabelle’s sedated echo. I have been … Continue reading Echos of Denial

HLHS

Goodbye 2013

What a year. What a crazy, mixed up, insane, incredible year. In many ways this year has been a great … Continue reading Goodbye 2013

HLHS

‘Nuff Said

It has been quite some time since I last posted, and for that I apologize. I haven’t had the time … Continue reading ‘Nuff Said

HLHS

Day 22 of 30 Days of Gratitude: I am grateful for Dr. Levine

We met Dr. Levine on March 6, 2012. We had just been told that our baby had a severe defect, … Continue reading Day 22 of 30 Days of Gratitude: I am grateful for Dr. Levine

HLHS

Day 21 of 30 Days of Gratitude: I am grateful, grateful, grateful for Dr. Emani and his incredible skill to give Isabelle a ‘perfect repair’.

From the first time I shook his hand I knew that this man was going to be our surgeon. The … Continue reading Day 21 of 30 Days of Gratitude: I am grateful, grateful, grateful for Dr. Emani and his incredible skill to give Isabelle a ‘perfect repair’.

HLHS

Day 20 of 30 Days of Gratitude: I am Grateful to Dr. Lightdale

There was no question after Isabelle’s first few weeks at the hospital that we were in the market for some … Continue reading Day 20 of 30 Days of Gratitude: I am Grateful to Dr. Lightdale

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UnknownGeneticMaterial

letters to a mother I never met

Pique

A one-page scrolling theme for small businesses

Matthew Fray

Author and Relationship Coach

The Belle Jar

"Let me live, love and say it well in good sentences." - Sylvia Plath

elissalevindavis

A Devastatingly Heavenly Darling

Life with adult ADHD: never a dull moment for a busy darling

Adventures of a Former Party Girl

Ginger. Newly sober. Cat lover. Still figuring out if I'm just as weird without alcohol.

800 Recovery Hub Blog

Written by people in recovery for people in recovery

Just A Rock

The trials of a young woman awkwardly trudging her way to happy destiny

Oliver's Twist

Hypoplastic Left Heart Syndrome- Our twist

keepingmychinup

"You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." -Maya Angelou

anaphase creative

litsense

Just another WordPress.com site

hopeinaheartshape

Finding hope in all shapes and sizes.

Echo of Hope

What's Up with Ari

Jud Nirenberg Blog

Just another WordPress.com site

hopeinaheartshape
Blog at WordPress.com.
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